At 13 years old, in November of 2021, Bella had spinal fusion surgery. Several months later, her left shoulder began to hurt. Tracy, Bella’s mom, contacted the surgeon, who stated that shoulder pain should not result from the spinal surgery. Bella researched her pain online and told her doctors she suspected cancer, but they dismissed … Read more
Ava Rose was born on August 2, 2014. She was a very healthy, playful little girl, growing and learning in all the ways toddlers do. However, when she was 22 months old, she slowly began to change in ways only a parent could notice. She seemed slower and less energetic. She began waking in the … Read more
Brittney Bliss was born May 27th, 2018, and she was the picture of perfection. She joined her older sister, Trinity, and our family was complete. Brian and I had tried for over a year to conceive and suffered a miscarriage before Brittney. She was our rainbow baby, just brought such light, love, and happiness to … Read more
A diagnosis of Acute Lymphoblastic Leukemia (ALL) isn’t typically a life sentence for a child. In fact, the 5-year survival rate for U.S. ALL patients younger than age 15 increased from 80.2% to 87.5% between 1990 and 2000. It’s referred to as “the good cancer” in children. And while that does offer some relief to … Read more
Back in November of 2023, our friend Libby at Make a Wish NH contacted us about a little girl named Hope living in Rochester. Hope had a very rare brain cancer that I hadn’t heard of before, called Astroblastoma, MN1 altering Bendz 2. And because it’s such a rare type, even doctors weren’t too sure … Read more
Onyx’s parents, Kris and Morgan, and their four year old son Jade have struggled in now being just a family of three. “It’s just devastating, we were so happy to have two boys close enough in age that they would be best friends for life
Charlie was an avid runner; whether it was on the trails in the woods, with the cross country team, on the lacrosse field, or down the hall to get his socks, he ran. It was in running that he first noticed something was wrong.
“There are no words when a doctor tells you that your child will die and there is nothing we can do to save her. How can I, as her mother, not do ANYTHING to help my baby? Until this day, I still have no words for that moment but it is burned into my memory forever.”
Owen was spunky, mischievous, funny, loving and kind. He had a wonderful singing voice and could often be found belting out his favorite songs even in public. Before his cancer progressed, he would often run fast like his heroes, Sonic and Buzz Lightyear.
Zachary was equally in shock and disbelief and I recall him asking the doctor, “Am I going to die?” It was a tremendous heaviness as though the world was falling down on top of us.
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