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Anaplastic Ependymoma | Rett's Roost

Diagnoses: Anaplastic Ependymoma

The Hewitts

Through everything Kailyn has grown to be an amazing young lady with her own unique quirks. Her mom Alison knows what her daughter is facing and told us, “I am broken everyday wondering to myself just how far this disease is going to go. How much of her life it is going to take away, and when and if it does, have I done enough to fight it?”

The Neal Family

We are a family of six. Jason and I (Shawnalee) have been married for 9 years and are the parents of 4 wonderful kids. Jordan (17), Cameron whom would be 15, Jason Jr (7), and Tiara (4). In april of 2010 our lives forever changed. Cameron was diagnosed with Anaplastic Ependymoma. Cameron was such a happy, vibrant and strong kid. There was no way he couldn’t beat brain cancer…. right? Cameron fought for 5 years, fighting through 5 brain surgeries, two 6 week stays for radiation, every chemo known to man, and approved and trial meds. In November 2014 his doctors gave us the worst news any child or parent could ever receive.