In the months before Aiden’s diagnosis, something just didn’t feel right. Once a thriving and energetic toddler, he began to show signs that, at first, seemed minor—but his parents knew better. It was the end of the COVID era, and Aiden, who had rarely been ill, suddenly came down with two back-to-back upper respiratory infections. … Read more
Ava Rose was born on August 2, 2014. She was a very healthy, playful little girl, growing and learning in all the ways toddlers do. However, when she was 22 months old, she slowly began to change in ways only a parent could notice. She seemed slower and less energetic. She began waking in the … Read more
Charlie was an avid runner; whether it was on the trails in the woods, with the cross country team, on the lacrosse field, or down the hall to get his socks, he ran. It was in running that he first noticed something was wrong.
Everything felt unreal and everything happened so fast. Treatment was work then all of a sudden it was not and Caden was gone. There was nothing I could do to save my baby. There was no real treatment to help him fight. I felt completely powerless and defeated.
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