Through everything Kailyn has grown to be an amazing young lady with her own unique quirks. Her mom Alison knows what her daughter is facing and told us, “I am broken everyday wondering to myself just how far this disease is going to go. How much of her life it is going to take away, and when and if it does, have I done enough to fight it?”
….having your infant son take his last breathe in your arms. Something I would never wish on anyone but also something I wouldn’t change for a second. I was there to bring him into this world and I was there to ease and comfort him on his way out.
It is always disruptive to the entire family when a child is diagnosed with cancer. In our case we added a relocation from Columbus, OH to Boston in addition to learning that we had two boys needing treatment instead of one, and that the treatment was risky and invasive.
In under two weeks time, Kate and Rodney Ross’s 2.5 year old daughter Kennedy, a girl with black raven curls nicknamed #littlemissadventure, was airlifted to Boston, underwent emergency surgery, suffered a stroke, was given a cancer diagnosis, and never regained consciousness.
Our story begins in early September 2014. Our 3 year old daughter Alison spent the spring/summer of 2014 battling constipation. The very regular issue for a 3 year old took a turn for the worse when we were visiting our family in Virginia for Labor Day weekend. Ali was dealing with quite a bit of pain in her abdomen and bottom area.
Our daughter, Addison, was diagnosed with high risk neuroblastoma at eighteen months old. She had a grapefruit-sized tumor originating in her right adrenal gland, basically flattening all organs around it. Over the course of a year, she underwent six rounds of chemo, a massive abdominal tumor resection, a stem cell transplant including a one hundred day isolation, twenty rounds of proton radiation, and five out of six rounds of antibody therapy.
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