Ava Rose was born on August 2, 2014. She was a very healthy, playful little girl, growing and learning in all the ways toddlers do. However, when she was 22 months old, she slowly began to change in ways only a parent could notice. She seemed slower and less energetic. She began waking in the … Read more
Laurel died in our bed between my husband and I in the early morning of June 15, 2018. We were up with her the night before, singing songs and reading and telling her she was the love of our life.
June was an amazingly spirited girl. She was the happiest, always, despite life’s circumstances. She completed treatment with beauty and grace. She is and was our angel and she will forever be the strongest person we have ever met.
It’s hard to describe what it was like. Time stopped. Priorities changed in an instant. Suddenly our future was a giant black hole, a giant question mark, with a good possibility our child would die despite our efforts to save him.
Our daughter, Addison, was diagnosed with high risk neuroblastoma at eighteen months old. She had a grapefruit-sized tumor originating in her right adrenal gland, basically flattening all organs around it. Over the course of a year, she underwent six rounds of chemo, a massive abdominal tumor resection, a stem cell transplant including a one hundred day isolation, twenty rounds of proton radiation, and five out of six rounds of antibody therapy.
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