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Our Families

Diagnoses

Charlie’s Hope

Charlie was an avid runner; whether it was on the trails in the woods, with the cross country team, on the lacrosse field, or down the hall to get his socks, he ran. It was in running that he first noticed something was wrong.

The Bragdon Family

“There are no words when a doctor tells you that your child will die and there is nothing we can do to save her. How can I, as her mother, not do ANYTHING to help my baby? Until this day, I still have no words for that moment but it is burned into my memory forever.”

The Austin Family

The three of us were holding him and it was an extremely peaceful transition. I felt very similar emotions as I did when he was born, which was just essentially an immense amount of love, only paired with sorrow instead of joy.

The Fromwiller Family

Chace’s mom told us that the news of his DIPG diagnosis completely rocked their world; it felt like their life completely stopped when everyone else’s kept going. They have experienced anger, sadness, and numbness at times. 

The Dougherty Family

Having a child is carrying a piece of your heart outside of your body. Losing a child is having to carry that empty space with you for always. It is a wound that never heals. We had hope and tried to make every day count for Odin.