Our daughter, Addison, was diagnosed with high risk neuroblastoma at eighteen months old. She had a grapefruit-sized tumor originating in her right adrenal gland, basically flattening all organs around it. Over the course of a year, she underwent six rounds of chemo, a massive abdominal tumor resection, a stem cell transplant including a one hundred day isolation, twenty rounds of proton radiation, and five out of six rounds of antibody therapy.
One Friday in January of 2014 our oldest child, Amy, who was seven at the time, came home from school feeling “not quite right.” She had a low grade fever and she was a little tired. She also had a nagging ache in her chest, which her pediatrician had attributed to growing pains for months. Amy was always an active child who loved playing with her brothers, doing gymnastics, crafts and reading. By Monday she was in the ICU at Boston Children’s Hospital and we learned that the ache was really a collapsed lung and a nine centimeter mass in her chest pushing on her lungs and heart. We were shocked. Even though Amy’s situation was already quite uncertain, we were still completely unaware of how intense the next year would be for our family.
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