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Resources for Grieving Families | Rett's Roost

Resources for Grieving Families


“Do not stand at my grave and weep, I am not there. I do not sleep.
I am a thousand winds that blow; I am the diamond glints on snow.
I am sunlight on ripened grain; I am the gentle autumn’s rain.
When you awaken in the morning’s hush, I am the swift uplifting rush of quiet birds in circled flight.
I am the soft star that shines at night.
Do not stand at my grave and weep, I am not there. I do not sleep”
– Unknown


Bereaved Family Support

“Especially when you’re grieving… Remember to take care of yourself with kindness, compassion, and without judgement.”


Online Grief Support

Compassionate Friends Facebook Group –

Bereaved Parents of the USA, Southern ME Chapter –

Helping Parents Heal Facebook Group

What’s Your Grief –

Bereaved Parents of Childhood Cancer Facebook Group

Still Standing Magazine

Coping with Death and Grief – The Bereavement Process Explained

Tom Zuba, Permission to Mourn (also follow Tom Zuba on fb) – 

David Kessler, (also follow David Kessler on fb) –

“i. cry.
for the life you lived
and the one you didn’t.”
– Unknown


Bereavement Retreats and Trips

Please note: All of these are open to all bereaved cancer parents and/or families, or all families who have lost a child. We are the only foundation providing DIPG-specific retreats for the uniqueness of experiencing this particular cancer.

“Grief, I’ve learned, is really just love.
It’s all the love you want to give but cannot.
All of that unspent love gathers up in the corners of your eyes,
the lump in your throat, and in that hollow part of your chest.
Grief is just love with no place to go.”
– Unknown


Bereaved Sibling Camps

“A mother always carries her children.
Sometimes she carries their life.
Sometimes she carries their death.
But she will always carry them, no matter where they are.”
– Rachel Lewis


Books Dealing With Grief and the Afterlife. 
  • It’s Ok That you’re Not Ok. Megan Devine.
  • On Grief and Grieving. Elizabeth Kubler-Ross & David Kessle
  • Transcending Loss. Ashley Davis Bush
  • To Heaven and Back. Mary Neal, MD
  • Permission to Mourn. Tom Zuba
  • Becoming Radiant. Tom Zuba
  • Bearing the Unbearable. Joanne Cacciatore, PhD
  • Grief Is A Journey. Dr. Kenneth J. Doka.
  • Chicken Soup for the Grieving Soul. Jack Canfield & Mark Hansen
  • Imagine Heaven. John Burke.
  • Transcending Loss. Ashley Davis Bush.
  • The Unspeakable Loss of a Child. Nisha Zenoff.
  • Living After Losing A Child. Ellen Mitchell.
  • The Grief Club. Melody Beattie
  • Please Be Patient I’m Grieving. Gary Roe.
  • Shattered Surviving the Loss of a Child. Gary Roe.
  • From Mother to Mother On the Loss of a Child. Emily R. Long
  • Finding Meaning: The Sixth Stage of Grief. David Kessler.
  • Many Lives, Many Masters. Brian L. Weiss, M.D.
  • Adventures of the Soul. James Van Praagh
  • Proof of Heaven: A Neurosurgeon’s Journey into the Afterlife – Eben Alexander
  • I Am Enough. Marissa Peer
  • Signs-The Secret Language of the Universe. Laura Lynne Jackson
  • A to Z Healing Toolbox. Susan Hannifin-MacNab




TED Talks/Videos