I started Rett’s Roost because I heard a calling—from Rett or God or both—to heal myself through healing others. I believed that surrounding myself with families that had faced pediatric cancer like we had would somehow ease the sadness of losing Rett. And it has done just that—with each retreat my heart explodes with love…. Read more »
Last year on Valentine’s Day, we were preparing to leave for St. Jude—a final glimmer of hope for our son. Instead of going out on a date, my husband and I were at our local hospital getting a final dose of antibiotics infused into Rett hoping to protect him from a plane of germs. I… Read more »
It’s been just about ten months since I held him in my arms–the same amount of time we got to spend with our son in this lifetime. And during this time, I’ve read a lot about grief and followed other people’s journeys through it, because I’d never really felt anything like it before, and I… Read more »
About one year ago, we found Everett’s cancer in his liver. There were no signs of him having a health issue, until one day, I noticed his belly seemed hard and he was strangely inconsolable. We found out the type of cancer, a malignant rhabdoid tumor, is one of the rarer and most aggressive cancers… Read more »
Welcome to the Rett’s Roost blog! We know it’s a little light on content, but rest assured (Rett’s assured?), we’ll be working hard to cull a cornucopia of content—stories and observations, research articles and studies, the funny, heartwarming, and everything in between. If you haven’t already, do be sure to peruse our website, and learn… Read more »