Support Us
Our Musings | Rett's Roost - Part 2

Our Musings



The Gift of Grief

It’s been just about ten months since I held him in my arms–the same amount of time we got to spend with our son in this lifetime. And during this time, I’ve read a lot about grief and followed other people’s journeys through it, because I’d never really felt anything like it before, and I… Read more »

When Suffering Empowers

About one year ago, we found Everett’s cancer in his liver. There were no signs of him having a health issue, until one day, I noticed his belly seemed hard and he was strangely inconsolable. We found out the type of cancer, a malignant rhabdoid tumor, is one of the rarer and most aggressive cancers… Read more »

Creating Rett’s Legacy

Welcome to the Rett’s Roost blog! We know it’s a little light on content, but rest assured (Rett’s assured?), we’ll be working hard to cull a cornucopia of content—stories and observations, research articles and studies, the funny, heartwarming, and everything in between. If you haven’t already, do be sure to peruse our website, and learn… Read more »

The health and well-being of our families and retreat supporters is our top priority. And therefore, we have decided to cancel our retreats this year. We are currently offering individual family trips and multiple virtual healing modalities that support our families and our therapists during this time of social distancing. Thank you for your understanding and support.    COVID-19 Updates Virtual Offerings
+